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PIPC submitted comments in response to the Patient-Centered Outcomes Research Institute’s Draft Methodology Report. In the comments PIPC Chairman Tony Coelho expressed concerns that the recommendations the Methodology Committee received in developing the report did not include a diverse representation from the perspectives of patients, people with disabilities, and their physicians and caregivers and that the report lacked transparency. Chairman Coelho urged the Methodology Committee to reach out to a broad range of stakeholders to create a more patient-centered approach to comparative effectiveness research.
The Partnership to Improve Patient Care (PIPC) recently commented on AHRQ’s Draft Methods Future Research Needs Report entitled “Engaging Stakeholders To Identify and Prioritize Future Research Needs.” In the comments, PIPC expresses appreciation of the report’s effort to determine the extent to which stakeholders are consulted to identify and prioritize future research needs, and urges AHRQ to recognize patients as stakeholders in their own right in a final report. PIPC also urges AHRQ to recognize that patients are different than consumers, and that patient views, experiences and needs are very district from a consumer.
In a letter to the Patient-Centered Outcomes Research Institute (PCORI), PIPC Chairman Tony Coelho discusses important elements of the priority-setting processes for comparative effectiveness research (CER). Chairman Coelho recommends that PCORI provide separate, sequential public comment periods on the CER research priorities and CER research agenda. In addition, as PCORI develops draft research priorities and a research project agenda, he asks that the Institute provide adequate opportunity for broad input from patients, physicians and other providers with relevant clinical expertise. Further, Chairman Coelho suggests that PCORI describe a systematic process for describing how input it receives will be considered and incorporated.
PIPC Comments: AHRQ Draft Report: Engaging Stakeholders To Prioritize Future Research Needs7/8/2011
PIPC appreciates the steps the Patient Centered Outcomes Research Institute (PCORI) has taken over the past few months to provide more open, transparent operations and reach out to various stakeholders. In this comment letter, PIPC recommends several additional steps PCORI should take to convey its commitment to patient-centered outcomes research, and strengthen its operations. These steps will ultimately help to increase the patient and provider community's confidence and trust in PCORI’s work.
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