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The Partnership to Improve Patient Care (PIPC), the American Association of People with Disabilities (AAPD), and over 80 other patient advocacy organizations have sent a formal comment letter urging CMS not to move forward with their proposed Part B Drug Payment Model. Instead, we hope to continue working with the agency and other stakeholders to ensure that, as it seeks to advance value-based health care, it is supporting care valued by patients and people with disabilities.
The Partnership to Improve Patient Care (PIPC)—whose members include organizations representing patients, people with disabilities and other stakeholders—today released a public opinion poll regarding healthcare delivery and access in America. The survey, which builds on prior surveys conducted by PIPC in 2013 and 2015, shows that of nearly 2,000 registered voters polled by Morning Consult, 8 in 10 say that doctors and patients should be able to decide the best course of treatment without government interference and that Medicare reforms should move toward patient-centered health care by giving physicians and patients the support they need to choose the best care for them
PIPC is proud to be a member of the Health Care Payment and Learning Action Network’s (LAN) Consumer and Patient Affinity Group (CPAG). The CPAG members were provided a rare opportunity to develop consensus-based consumer and patient principles to inform the work of the LAN and its many subgroups. A draft of the principles agreed to by the Leadership Committee of the CPAG are now available for comment. A list of the Leadership Committee members is available here.
Private payers are already relying on one-size-fits-all assessments of value, often making it difficult for patients to access the care they want and need. Therefore, PIPC and its partners support the use of the National Health Council’s (NHC) Patient-Centered Value Model Rubric by developers of value assessments to mitigate the existing shortcomings of value assessments and tools. The NHC’s rubric already provides a guide to evaluate the patient-centeredness of value models and to gude value model developers on the meaningful incorporation of patient engagement throughout their processes
Today, the Partnership to Improve Patient Care (PIPC) submitted formal comments to the Bipartisan Chronic Care Working Group of the Senate Finance Committee on their recently proposed policy options document.The four-person task force consists of Sens. Orrin Hatch (R-UT), Ron Wyden (D-OR), Johnny Isakson (R-GA), and Mark Warner (D-VA), and seeks to improve the treatment and management of chronic illness. PIPC's comments represent the viewpoints of a broad range of stakeholders dedicated to patient-centeredness and helps promote meaningful patient engagement in the design of future policy options.
Today, the Partnership to Improve Patient Care (PIPC) submitted comments on the Alternative Payment Model (APM) Framework Draft White Paper composed by the Health Care Payment and Learning Action Network (LAN). In the comments, PIPC expresses our belief that a few foundational elements must be in place for an APM framework to be successful. First, new payment models must have the tools to appropriately risk adjust so that bundled, population-based or capitated payment models do not inappropriately restrict access to care for chronically ill and disabled patients. Second, quality measures must be developed and implemented that capture outcomes that matter to patients so that “quality” and “value” are based on patient needs, preferences and outcomes. Third, decision aids must exist and be used that provide patients with unbiased access to their treatment options and the impacts of those treatments on outcomes that matter to patients so that shared decision-making is meaningful. Lastly, a constant feedback loop must exist to identify in real time the impact of new payment models on access to care, particularly for vulnerable populations.
Today, the Partnership to Improve Patient Care (PIPC) submitted comments on the implementation of the Merit-based Incentive Payment System (MIPS), Promotion of Alternative Payment Models, and Incentive Payments for Participation in Eligible Alternative Payment Models passed as part of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Since its founding, PIPC has been at the forefront of patient-centeredness in comparative effectiveness research (CER) – both its generation at the Patient-Centered Outcomes Research Institute (PCORI), and its translation into patient care. Having driven the concept of patient-centeredness in the conduct of research, PIPC looks forward to bringing the patient voice to the discussion of how to advance patient-centered principles throughout an evolving health care system
The Partnership to Improve Patient Care (PIPC) and the Cancer Support Community (CSC) convened a roundtable on July 8, 2015 on “Patient-Driven Health Care and Evidence in Oncology: Setting an Agenda.” The roundtable participants represented patient organizations serving cancer patients, as well as a representative from the Patient-Centered Outcomes Research Institute (PCORI). Roundtable participants discussed the outcomes that matter to oncology patients and policies that would support high-quality, patient-driven cancer care.
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