By Kelly Israel & Sara van Geertruyden People with disabilities are consistently told they are too expensive to treat when compared to other groups. A metric of determining cost effectiveness of treatments and health services called the quality-adjusted life year (QALY) is yet another tool to make that argument on a larger scale. |
![]() In This Week’s Issue: 1. Value Assessment in the News, see details below. 2. Is the QALY Fit for Purpose? Click here to read the journal. 3. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details. 4. Public Comment on PCORI Proposed National Priorities for Health, see details below. 5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 6. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 7. Emerging Threats in States for Use of Discriminatory Metrics, see details below. 8. IVI to Hold Second Methods Summit, click here to learn more. 9. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input. 10. Upcoming Events and Webinars, see details below. 11. Medical Journal Articles, see details below. 12. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. IVI Webinar: How Should Policy Uphold Equity in Value Assessment?, click here to learn more and register. 2. Value Assessment in the News, see details below. 3. Public Comment on PCORI Proposed National Priorities for Health, see details below. 4. KQED: Step Therapy Protocols Keep Patients from Accessing Post-Partum Depression Treatment, click here to read the story. 5. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Atopic Dermatitis, see details below. 6. RECORDING AVAILABLE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar. 7. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 8. Emerging Threats in States for Use of Discriminatory Metrics, see details below. 9. IVI to Hold Second Methods Summit, click here to learn more. 10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input. 12. Upcoming Events and Webinars, see details below. 13. Medical Journal Articles, see details below. 14. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. Public Comment on PCORI Proposed National Priorities for Health, see details below. 2. KQED: Step Therapy Protocols Keep Patients from Accessing Post-Partum Depression Treatment, click here to read the story. 3. PIPC Submits Comments to CMS on National Coverage Decision for Screening Lung Cancer with LDCT, click here to read the letter. 4. Health Affairs: Medicare Beneficiaries with Disabilities More Likely to Have Preventable Emergency Room Visits, click here to view the paper. 5. RECORDING AVAILABLE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar. 6. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 7. Emerging Threats in States for Use of Discriminatory Metrics, see details below. 8. IVI to Hold Second Methods Summit, click here to learn more. 9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 10. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input. 11. Upcoming Events and Webinars, see details below. 12. Medical Journal Articles, see details below. 13. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. WEBINAR TOMORROW: Public Comment on PCORI Proposed National Priorities for Health, see details below. 2. TOMORROW: AUCD Webinar on Strategies for COVID-19 Vaccine Access and Confidence for People with Disabilities, click here to register. 3. PIPC Submits Comments to CMS on National Coverage Decision for Screening Lung Cancer with LDCT, click here to read the letter. 4. Health Affairs: Medicare Beneficiaries with Disabilities More Likely to Have Preventable Emergency Room Visits, click here to view the paper. 5. RECORDING AVAILABLE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar. 6. New CDC Guidance on COVID-19 Vaccines for People with Underlying Medical Conditions, click here to read more. 7. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 8. Emerging Threats in States for Use of Discriminatory Metrics, see details below. 9. IVI to Hold Second Methods Summit, click here to learn more. 10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input. 12. Upcoming Events and Webinars, see details below. 13. Medical Journal Articles, see details below. 14. AHRQ Effective Program Updates, see details below. ![]() In This Week's Issue: 1. PIPC Submits Comments to CMS on National Coverage Decision for Screening Lung Cancer with LDCT, click here to read the letter. 2. HAPPENING TODAY: SIDM Webinar on Proposed Common Format for Diagnostic Errors, see details below. 3. RECORDING AVAILALE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar. 4. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Atopic Dermatitis, click here to read the letter. 5. New CDC Guidance on COVID-19 Vaccines for People with Underlying Medical Conditions, click here to read more. 6. Transcript Available: May 24-25 PCORI Board of Governors Meeting, click here to view. 7. SECOND WEBINAR THIS IVI Webinar Series: Toward Equity in Value Assessment, click here to learn more. 8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 9. Emerging Threats in States for Use of Discriminatory Metrics, see details below. 10. IVI to Hold Second Methods Summit, click here to learn more. 11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 12. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input. 13. Upcoming Events and Webinars, see details below. 14. Medical Journal Articles, see details below. 15. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Atopic Dermatitis, click here to read the letter. 2. PIPC Submits Comments to ICER on Draft Evidence Report for Alzheimer's Treatments, click here to read the letter. 3. IVI Webinar Series: Toward Equity in Value Assessment, click here to learn more. 4. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 5. Emerging Threats in States like MD, CO, and OR for Use of Discriminatory Metrics, see details below. 6. IVI to Hold Second Methods Summit, click here to learn more. 7. Vaccination Equity and Communication, see details below. 8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 9. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input. 10. Upcoming Events and Webinars, see details below. 11. Medical Journal Articles, see details below. 12. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. Discrimination and Health Care: How it Impacts You, click here to register for the webinar. 2. PIPC Submits Comments to ICER on Draft Evidence Report for Alzheimer's Treatments, click here to read the letter. 3. New York Times Story on the Experience of One Patient with Sickle Cell Disease, click here to read the article. 4. National Health Council and Tufts Launch New Patient-Centered Value Assessment Initiative, click here to learn more. 5. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 6. Emerging Threats in States like CO and OR for Use of Discriminatory Metrics, see details below. 7. IVI to Hold Second Methods Summit, click here to learn more. 8. Vaccination Equity and Communication, see details below. 9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 10. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input. 11. Upcoming Events and Webinars, see details below. 12. Medical Journal Articles, see details below. 13. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. Discrimination and Health Care: How it Impacts You, click here to register for the webinar. 2. COMMENTS DUE TOMORROW: Amplifying the Voices of Alzheimer’s, see details below. 3. New York Times Story on the Experience of One Patient with Sickle Cell Disease, click here to read the article. 4. PIPC Chairman Applauds NCD Efforts to Combat Discriminatory Health Care Policies, click here to read the letter. 5. National Health Council and Tufts Launch New Patient-Centered Value Assessment Initiative, click here to learn more. 6. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 7. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below. 8. IVI to Hold Second Methods Summit, click here to learn more. 9. Vaccination Equity and Communication, see details below. 10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input. 12. Upcoming Events and Webinars, see details below. 13. Medical Journal Articles, see details below. 14. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. PIPC Chairman Applauds NCD Efforts to Combat Discriminatory Health Care Policies, click here to read the letter. 2. National Health Council and Tufts Launch New Patient-Centered Value Assessment Initiative, click here to learn more. 3. Mom of Child with SMA Testifies Before Congress, see details below. 4. Amplifying the Voices of Alzheimer’s, see details below. 5. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 6. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below. 7. IVI to Hold Second Methods Summit, click here to learn more. 8. Vaccination Equity and Communication, see details below. 9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 10. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input. 11. Upcoming Events and Webinars, see details below. 12. Medical Journal Articles, see details below. 13. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. National Health Council and Tufts Launch New Patient-Centered Value Assessment Initiative, click here to learn more. 2. PIPC Chairman Applauds NCD Efforts to Combat Discriminatory Health Care Policies, click here to read the letter. 3. Mom of Child with SMA Testifies Before Congress, see details below. 4. Amplifying the Voices of Alzheimer’s, see details below. 5. National Viral Hepatitis Roundtable Calls for Removed HCV Treatment Barriers, click here to view the letter. 6. IVI to Hold Second Methods Summit, click here to learn more. 7. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 8. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below. 9. Vaccination Equity and Communication, see details below. 10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, Asthma, click here to provide patient input. 12. Upcoming Events and Webinars, see details below. 13. Medical Journal Articles, see details below. 14. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. National Viral Hepatitis Roundtable Calls for Removed HCV Treatment Barriers, click here to view the letter. 2. NCD Letter on H.R. 3, click here to read the letter. 3. PIPC Chairman, Tony Coelho, reiterates PIPC’s Commitment to Nondiscrimination, see details below. 4. Over 85 Disability and Patient Groups Sign Open Letter: Reject Health Policies that Discriminate, see details below. 5. IVI to Hold Second Methods Summit, click here to learn more. 6. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 7. IVI Value Model on Major Depressive Disorder, see details below. 8. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below. 9. Vaccination Equity and Communication, see details below. 10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, Asthma, click here to provide patient input. 12. Upcoming Events and Webinars, see details below. 13. Medical Journal Articles, see details below. 14. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. NCD Letter on H.R. 3, click here to read the letter. 2. PIPC Chairman, Tony Coelho, reiterates PIPC’s Commitment to Nondiscrimination, see details below. 3. Over 85 Disability and Patient Groups Sign Open Letter: Reject Health Policies that Discriminate, see details below. 4. IVI to Hold Second Methods Summit, click here to learn more. 5. Patient Advocates: International Reference Pricing Would Decimate Alzheimer's Disease Research, see details below. 6. IHP: QALYs in the News, see details below. 7. IHP: Advocates Sue To Overturn Trump CMS Approval Of TN Funding Demo, click here to view the article (subscription only). 8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 9. IVI Value Model on Major Depressive Disorder, see details below. 10. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below. 11. Vaccination Equity and Communication, see details below. 12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 13. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input. 14. Upcoming Events and Webinars, see details below. 15. Medical Journal Articles, see details below. 16. AHRQ Effective Program Updates, see details below. ![]() In This Week’s Issue: 1. PIPC Chairman, Tony Coelho, reiterates PIPC’s Commitment to Nondiscrimination, see details below. 2. Patient Advocates: International Reference Pricing Would Decimate Alzheimer's Disease Research, see details below. 3. Over 85 Disability and Patient Groups Sign Open Letter: Reject Health Policies that Discriminate, see details below. 4. People With Disabilities Could Soon Face Health Care Discrimination, click here to read the article. 5. IHP: QALYs in the News, see details below. 6. IHP: Advocates Sue To Overturn Trump CMS Approval Of TN Funding Demo, click here to view the article (subscription only). 7. NCD Writes to CBO on Reliance on the QALY for Budget Scores, click here to read the letter. 8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below. 9. IVI Value Model on Major Depressive Disorder, see details below. 10. WEDNESDAY: AAPD Leadership Awards Gala, click here to register. 11. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below. 12. Vaccination Equity and Communication, see details below. 13. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 14. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input. 15. Upcoming Events and Webinars, see details below. 16. Medical Journal Articles, see details below. 17. AHRQ Effective Program Updates, see details below.
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