On November 19, 2014, PIPC held its 5th annual forum in Washington, DC. It is hard to believe that just 5 years ago we had Senator Baucus here talking to us about his vision for a patient-centered research institute that would support patient-centered care delivery. And today, the Patient-Centered Outcomes Research Institute (PCORI) is up and running. PCORI is changing the culture of research by engaging and including patients throughout the research process—from prioritizing research questions to engaging in research design and helping disseminate findings into practice. But as you know, and I know, it doesn’t stop there. For the investment in patient-centered outcomes research to have meaning, we must also have a health system that embraces the same principles of patient-centeredness.
In This Week’s Issue:
1. PIPC Welcomed Congressional Staff and Expert Panel to Discuss Patient-Centered Health Care, click here to view the presenter’s slides. 2. New York Times: In Congress, Obama’s Health Care Act Is Still a Target, click here to view the full article. 3. Gaston Gazette: Public employers, like private ones, dealing with costs of Obamacare, click here to view the article. 4. PCORI Blog: Meeting Up to Promote Patient-Centered Outcomes Research, click here to view the blog. 5. American Thinker: Patient-Centered Medicine and the Struggle to Survive Obamacare, click here to view the full article. 6. Ortho Spine News: Patient-centered and patient-reported outcomes are primary topic at ACR conference, click here to view the full post. 7. Med Page Today: MS Community Flares Over AHRQ Report, click here to view the full article. 8. The Pink Sheet Daily: Industry Warming To Outcomes-Based Payments For Real Innovation, click here to view the article (subscription required). 9. Health Affairs Blog: Shifting From Depression Screening Alone To Evidence-Based Depression Treatment In ACOs, click here to view the blog. 10. Medical Journal Articles, see details below. 11. AHRQ Effective Program Updates, see details below. PIPC Welcomed Congressional Staff and Expert Panel to Discuss Patient-Centered Health Care11/19/2014
PIPC Chairman Tony Coelho moderated a forum today on Building a Patient-Centered Health System. At the forum, Congressional staffers discussed their ongoing work in Congress and appreciation for PIPC’s work to keep patients at the center of health care. Ms. Sue Sheridan provided the audience with an update on the ongoing work of PCORI to engage patients in research. Dr. Kristin Carman presented the Patient and Family Engagement Roadmap developed by the American Institutes for Research (AIR). Ms. Sally Okun discussed the work of PatientsLikeMe to connect networks of patients and their recent work on an Open Research Exchange. And finally, Dr. Tanisha Carino discussed the ongoing work of Avalere to support alternative payment models, and particularly their work on the use of Patient-Reported Outcome Measures.
In This Week’s Issue:
1. Join PIPC Chairman Tony Coelho on Wednesday, for the 5th Annual PIPC Forum: Building a Patient-Centered Health System, click here to RSVP. 2. Inside Health Policy: PIPC Comments on MedPAC Consideration of Part B Drug Payment Policy, click here to view the article. 3. Brookings: What the 2014 Election Results Really Mean for Health Care, click here to view the blog. 4. NEJM: The Concept of Risk in Comparative-Effectiveness Research, clickhere to view the article. 5. Modern Healthcare: Comments Sought on Informed Consent in Rules for Comparison Studies, click here to view the article (subscription required). 6. Annals of Family Medicine: Publishing Patient-Centered Outcomes Research, click here to view the article. 7. PCORnet: In the News: Data Driven Medicine – Informing the Cure, clickhere to view the full post. 8. IOM: Ethical Review and Oversight Issues in Research Involving Standard of Care Interventions: A Workshop, click here for details. 9. Health Affairs: Twitter Chat With PCORI, click here for details. 10. Medical Journal Articles, see details below. 11. AHRQ Effective Program Updates, see details below. MedPAC Explores Fixes To Part B Drug Payment Policy, Calls Current System 'Perverse Incentive'11/12/2014
Today, PIPC Chairman Tony Coelho was quoted in a piece by Inside Health Policy regarding Medicare Part B's drug payment policy. The Congressional commission, Medicare Payment Advisory Commission (MedPC), recently discussed support, from a small number of commissioners, for allowing CMS to return to the controversial “least costly alternative” model it used from 2005 to 2010 that MedPAC discussed at its September meeting. “As the Commission moves forward in their deliberations to improve outcomes and reduce costs in the Medicare program, PIPC hopes that MedPAC will pursue policies that activate patients and lead to long-term health improvements, rather than focusing on those that could threaten to jeopardize the nature of the doctor-patient relationship,” said Chairman Coelho.
n This Week’s Issue:
1. PIPC Comments on MedPAC Consideration of Least Costly Alternative (LCA) Policy, click here to view PIPC’s letter. 2. PIPC Member, NAMI, Comments to PCORI on Proposal for Peer Review of Primary Research and Public Release of Research Findings, click here to view the letter. 3. Brookings, RAND Release Report on APMs in Gastroenterology, click here to view the report. 4. CMS Seeks Nominations for MEDCAC, click here to view the notice. 5. Health Affairs: The Payment Reform Landscape: Benefit And Network Design Strategies To Complement Payment Reform, click here to view the blog. 6. Using Real-World Data for Outcomes Research, Comparative Effectiveness Studies, click here to view the article. 7. Modern Healthcare: Actor Alan Alda advises AAMC attendees on how to talk about medical science, click here to view the article. 8. Medical Journal Articles, see details below. 9. AHRQ Effective Program Updates, see details below. PIPC is deeply concerned about MedPAC’s discussion of giving CMS new authority to make “least costly alternative” judgments about patient treatment options. PIPC fought hard for patient protections in the Affordable Care Act that ensure CMS does not misuse comparative effectiveness research to impose “one-size-fits-all” coverage or payment policies. LCA could undercut these protections and prevent doctors and patients from making informed decisions about the treatment option that is best for the individual patient. We urge MedPAC not to move forward in recommending new LCA authority for CMS.
In This Week’s Issue:
1. Please Join Us at the PIPC Forum on Nov. 19! Click here to view the invitation. 2. PIPC Encourages PCORI to Prioritize Patient-Centered Outcomes in Hep C Discussion, click here to view the letter. 3. PIPC Members Participate in PCORI Teleconference on Peer Review Process,” click here to view the presentation slides 4. PCORI: Proving the Concept: Moving Ahead with PCORnet's First Clinical Trial, click here?to view the blog post. 5. Health Affairs: A Simple Case Of Chest Pain: Sensitizing Doctors To Patients With Disabilities, click here to view the article. 6. CQ Health Beat: Drug Industry Group Recommends Quality Measures for ACOs, click here to view the article (subscription required). 7. Wall Street Journal: Accountable Care Organizations Are the Better Future, click here to view the article. 8. The Morning Consult: The Affordable Care Act: Is It Working as Intended? Click here to view the article. 9. AMA Wire: Improve Quality, Avoid Penalties Using Clinical Data Registries, click here to view the post. In This Week's Issue:
1. PIPC's 5th Annual Forum Nov. 19: Building a Patient-Centered Health System, click here for details and here to RSVP 2. PIPC Attends PCORI Workshop Highlighting HCV Research Questions, click here to view PIPC’s recommendations and here to view the Inside Health Policy article (subscription required). 3. PIPC Member, Alliance for Aging Research, Hosts Webinar on Safe Medication Storage, click here to register. 4. The American Journal of Managed Care: New Guiding Principles for Patient-Centered Care, click here to view the full article. 5. PCORI Updates: Engagement Awards Program, GAO Seeks Nominees for Methodology Committee, click here to view details and click here to view the announcement. 6. OHRP Issues Standard-of-Care Draft Guidance, click here to view the guidance. In This Week’s Issue:
1. PIPC Responds To MedPAC Consideration of ‘LCA Policy’ in Medicare Part D, click here to view the letter. 2. PIPC Submits Comments to CMS on Beneficiary Engagement and Incentives, click here to view the letter. 3. Inside Health Policy References PIPC Roundtable on Hepatitis C in Discussion of PCORI Workgroup, click here to view the article (subscription only). 4. Event: Alliance for Aging Research Discussion on “The New Age of Aging”, click here for details. 5. JAMA: The PCORI Perspective on Patient-Centered Outcomes Research, click here to view (subscription only). 6. Oncology Blog: ‘Turning the Tide' Working Group Issues Recommendations on Patient-Centered, Value-Based Cancer Care, click here to view the blog and recommendations. 7. Blog: Going PRO – Clinical Trials must Plan to Capture Patient-Reported Outcomes, click here to view the blog. 8. PCORI Blogs: Generating Knowledge from Healthcare Practice; Guiding Research to Improve Healthcare, click here and here. In This Week’s Issue:
1. PIPC Chairman Coehlo Publishes Health Affairs Blog, click here to view the blog. 2. PIPC Releases White Paper on ‘Building a Patient-Centered Health System’, click here to view the white paper. 3. Turning the Tide Against Cancer: Actionable Policy Options Aimed at Fostering Patient-Centered Research and Care, click here to view. 4. Inside Health Policy: Consumer Advocates Worry PCORI's Peer-Review Plan Could Delay Access To CER Findings, click here to view the article (subscription required). 5. Focus On Value Turns to Specialty Drugs, click here to view an AJMC article, and here to view a Pink Sheet article. 6. PCORI Blogs, click here to view the blogs. 7. IOM Seeking Nominees for Roundtable on Health Literacy, click here for more information. When patient-centered outcomes research “is used well, it can be a powerful tool in making medical care better informed, without limiting patients’ and providers’ choices.” That was the promise that I, and many others, held out with creation of the Patient-Centered Outcomes Research Institute (PCORI) in 2010. Will PCORI achieve this goal? It is increasingly clear that evolving “value-based” payment models in health care, accelerated via the Affordable Care Act (ACA), will play a central role in how that question gets answered
Today, Health Affairs published an opinion piece written by Chairman Coelho to announce the release of PIPC's new White Paper on patient-centeredness in alternative payment models (APMs). Chairman Coelho wrote the op-ed to highlight the importance of building APMs on a foundation of patient-centeredness throughout the healthcare system. This White Paper and Health Affairs opinion represent an important step in PIPC’s discussion of the application of comparative effectiveness research, and should serve as an important tool for policymakers in considering the future of value-based payment models.
In This Week’s Issue:
1. PIPC Chairman Coelho To Moderate Panel at National Conference on Cancer, click here to register for the conference and here to view the blog post. 2. American Institute for Research: Roadmap for Patient & Family Engagement in Healthcare, click here to download the Roadmap and register for the Tuesday webinar. 3. PCORI Board Approves $102 Million in Support for 46 New Research Projects, Bloomberg Reports, click here for the PCORI press release and here to view the Bloomberg article (subscription required). 4. PCORI: See How Patients, Researchers, and Clinicians Are Working Together to Improve Care and Outcomes, click here to view the full post. 5. MedCity News: This Is Why Clinicians Need to Partner With Patients Instead of Seeing Them as Subjects, click here to view the full article. 6. NEJM: Swimming Against the Current — What Might Work to Reduce Low-Value Care? Click here to view the full article. 7. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research, click here to view the post. 8. The American Journal of Managed Care: Reforming the Healthcare Delivery System, click here to view the full article. 9. WSJ: Design Power: Patients Play Researchers in Drug Trials, click here to view the article. 10. PCORI at Age Four: What We've Achieved and Where We're Headed, click here to view the full post. 11. Health Affairs Blog: The Payment Reform Landscape: Value-Oriented Payment Jumps, And Yet … Click here to view the full article. 12. PCORI, AHRQ Announce Research Team Selected to Compare Treatments for Uterine Fibroids, click here for the full press release. In This Week’s Issue:
1. Save the Date for PIPC’s 5th Annual PIPC Forum on Building a Patient-Centered Health System: November 19, 2014 from 12pm-2pm. 2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire, click here to view the full press release. 3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff, click here for the post and InfoGraphic. 4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign, click here to view the article. 5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research, click here to view the full post. 6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research, click here to view the article (subscription required). 7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers, click here to view the full post. |
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