Results from a poll of 1,500 registered voters strongly suggest that Americans want to be active participants in determining their healthcare treatments, and prefer limited government intervention when it comes to the treatments they can access.
In This Week’s Issue:
1. PIPC Chairman Tony Coelho: Strategies to Engage and Empower the Patient in Care Delivery: Just Ask the Patient, click here to view the article. 2. Morning Consult: The Great Threat of Rising Health Care Costs, click here to view the article. 3. PCORI Blog: A Learning Laboratory for Partnership Development: Initial Findings, click here to view the blog post. 4. PCORI Blog: What's New in PCORI's Cycle 2 2015 Funding Announcements: Improving Methods for Conducting Patient-Centered Outcomes Research, click here to view the blog post. 5. AJMC Videos: Improving Data Availability; Determining Value for Breakthrough Therapies, click here and here to view the videos. 6. University of Maryland: CER and PCOR Summer Institute 2015, see details below. There’s a lot of talk right now about moving health care towards value-based payment models. But will these new models reward care that patients actually value? Maybe. It depends, first and foremost, on bringing patients into the conversation and giving them a meaningful voice.
The Affordable Care Act embraced important patient-centered principles, through the creation of the Patient-Centered Outcomes Research Institute (PCORI), and its embrace of concepts like shared decision-making in health care. The shift from a payment system based on quantity to quality could be promising – depending on how we define quality. But if the healthcare system of the future is to achieve outcomes that matter to patients, it must systematically engage patients in their own healthcare decision-making and in governance. Without this sustained commitment, the enterprise will too easily slip to one that merely rewards providers for achieving cost containment through fewer treatment or service choices for patients. In This Week’s Issue:
1. PIPC Provides Recommendations to Senate Finance Committee on Development of Chronic Care Legislation, click here to view the letter. 2. Forbes: We Must Return To Patient-Centered Care, Compensate Physicians For End Of Life Conversations, click here to view the article. 3. Wall Street Journal: Health-Data Donors Aim to Aid Science, click here to view the article. 4. KevinMD Blog: Patient Engagement Is in Search of a Definition, click here to view the blog post. 5. PCORI Blog: A Textbook Example of Patient-Driven Research, click here to view the blog post. 6. University of Maryland: CER and PCOR Summer Institute 2015, see details below In This Week’s Issue:
1. Patrick Conway: CMS’ Core Quality Measures Collaborative: A Rationale And Framework For Public-Private Quality Measure Alignment, click here to view the blog post. 2. New York Times: Cancer Doctors Offer Way to Compare Medicines, Including by Cost, click here to view the article. 3. Healthcare Informatics: Centers of Excellence to Study Dissemination of Evidence-Based Care Practices, clickhere to view the article. 4. Blog: Here Are the 5 Reasons Republicans Are Trying to Cut Research on Evidence-Based Medicine, click hereto view the article. 5. Medical Journal Articles, see details below. 6. Upcoming Events and Webinar, see details below. 7. AHRQ Effective Program Updates, see details below. In This Week’s Issue:
1. PIPC Convenes Leaders to Define Roadmap for Engaging and Empowering Patients, click here to view the press release. 2. Morning Consult: CMS Just Accelerated the Path to Value-Based Care, click here to view the article. 3. KevinMD: The Challenge in Following Evidence-Based Guidelines, click here to view the article 4. PCORI Blog: Surveys Show Great Interest in Patient-Centered Clinical Research, click here to view the blog post. 5. Study: How Comparative Effectiveness Research Is Viewed and Used by Policymakers, click here to view the blog post. 6. Draft House Bill Would Eliminate AHRQ, Cut PCORI, CMMI Funding, click here to view the article. 7. Blog: The Patient Voice Comes to BIO, click here to view the blog post. In This Week’s Issue:
1. PIPC Convenes Leaders to Define Roadmap for Engaging and Empowering Patients, click here to view the press release. 2. Morning Consult: CMS Just Accelerated the Path to Value-Based Care, click here to view the article. 3. KevinMD: The Challenge in Following Evidence-Based Guidelines, click here to view the article 4. PCORI Blog: Surveys Show Great Interest in Patient-Centered Clinical Research, click here to view the blog post. 5. Study: How Comparative Effectiveness Research Is Viewed and Used by Policymakers, click here to view the blog post. 6. Draft House Bill Would Eliminate AHRQ, Cut PCORI, CMMI Funding, click here to view the article. 7. Blog: The Patient Voice Comes to BIO, click here to view the blog post. The Partnership to Improve Patient Care (PIPC) today released a detailed summary and recommendations from an expert roundtable it convened April 15 of this year to explore strategies for engaging and empowering patients in care delivery. Convened by PIPC Chairman Tony Coelho, the roundtable consisted of 17 thought-leaders in the area of patient engagement and activation, all of whom shared their concerns about the existing health care infrastructure for meaningful patient and beneficiary engagement, and provided ideas for improvement.
In This Week’s Issue:
1. PIPC Releases Roundtable Recommendations for Engaging and Empowering Patients, click here to view the press release. 2. KevinMD: Why Guidelines Should Only Be a Framework. They Should Not Be Rules, click here to view the article. 3. PCORI Blog: An Application's Journey from Merit Review to Project Funding, click here to view the blog post. 4. Health Affairs Blog: Promoting Transparency And Clear Choices In Health Care, click here to view the blog post. 5. PCORI Blog: Research to Improve Children's Health, click here to view the blog post. 6. New York Times: The Evidence Points to a Better Way to Fight Insomnia, click here to view the article. 7. AJMC: Meaningfully Engaging Patients in ACO Decision Making, click here to view the blog In This Week’s Issue:
1. PIPC Patient Blog: Laura Roix, click here to view the blog post. 2. PIPC Welcomes New Signatures on Letter to HHS Seeking Patient Engagement, clickhere to sign the letter. 3. Academy Health Highlights PCORI’s Stakeholder Engagement Rubric, click here to view the blog post. 4. CMS Finalizes Rules for Medicare Shared Savings Program, click here to view the press release. 5. PCORI Director: Advancing The Use Of Health Data In Research With PCORnet, clickhere to view the article. 6. Health Affairs Blog: Accountable Care Organizations Taking Hold And Improving Health Care In California, click here to view the article. 7. Rigorous Methodology Key to Comparative Effectiveness Research, click here to view the article. My name is Laura Roix, and I’ve been living with idiopathic pulmonary fibrosis (IPF) since 2006. After going through multiple false diagnoses from a number of doctors, I finally found what worked for me: self-advocacy and perseverance. Until I got to that point though, I went through 6 years of difficult medical experiences that finally led me to become a self-advocate for my medical care. Starting in 2006, I visited a pulmonary doctor after being diagnosed with pneumonia multiple times. The pulmonologist found that I had scar tissue in my lungs, and we monitored it for years. He always said that it wouldn’t spread so not to worry about it – but things quickly changed in 2012. In February of that year, my doctor let me know the scarring had spread; not only in my right lung, where it was originally occurring, but also to the left. In This Week’s Issue:
1. Evidence-Based Medicine and the Newly Trained Physician: A Relationship in the Works, click here to view the article. 2. APA: Predictive Analytics and Big Data Hold Promise in Mood Disorders, click here to view the article. 3. Bipartisan Policy Center Pushes for Cost-Effectiveness Analysis, click here to view the report. 4. PCORI Commits $120 Million to New Patient-Centered Research, click here to view the article. In This Week’s Issue:
1. PIPC Welcomes New Signatures on Letter to HHS Seeking Patient Engagement, click here. 2. Epilepsy Foundation Leader Appointed to Research Institute's Multi-Stakeholder Advisory Panel, click here to view the press release. 3. The Health Care Blog: Value-Based Care's Data Problem, click here to read the blog post. 4. PCORI Blog: Developing Methods to Engage Patients and Other Stakeholders in Research Prioritization, clickhere to view the blog post. 5. American Journal of Managed Care: Implementing a Learning Healthcare System, click here to view the article. 6. Video: The Importance of Patient-Centered Oncology Care, click here to view the video. In This Week’s Issue:
1. Inside Health Policy: 'Patient Groups Seek Key Role In Health Care Payment Learning And Action Network', click here to view the article. 2. NPFW: Save Online Access to Health Information, see below to sign the letter. 3. Not Dead Yet: Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems, click here to view the letter. 4. PCORI Board Approves PCORnet Trial Award, New Demonstration Projects, click here to view the blog post. 5. Clinical Trials In The Real World, click here to view the article. 6. KevinMD: Putting Patient-Centeredness into Practice, click here to view the article. 7. Video: Incorporating Patient-Reported Outcomes in Drug Labels, click here to view the video. 8. PCORI Blog: Mental Health as a Major Focus of PCORI Funding, click here to view the blog post. 9. Upcoming Events and Webinar, see details below. 10. Medical Journal Articles, see details below. 11. AHRQ Effective Program Updates, see details below. As highlighted in an article in Inside Health Policy, "more than 60 patient groups and members of [PIPC] are asking HHS to make the Health Care Payment Learning and Action Network patient-centered by including patient groups in the network and using best practices from the FDA and Patient-Centered Outcomes Research Institute to solicit patient engagement with the initiative." While most patient stakeholders agree that paying for “value” rather than “volume” will result in better outcomes for patients, the shift to value-based payment holds significant implications for the patient-centeredness movement and the related issues of patient access and the physician-patient relationship. That’s why PIPC led this letter - to ensure that that patients have a seat at the table in determining how these new payment models are implemented. “I look forward to collaborating with HHS to effectively bring the patient voice to their ambitious new framework to move our health care system away from rewarding health providers for the quantity of care they provide and toward rewarding quality. Empowering patients to play an active role in their healthcare should be a strategic and achievable goal of this important work,” Partnership chair Tony Coelho told Inside Health Policy. |
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