- PIPC Patient Blog: Tom Hardy Testifies for Access to Multiple Myeloma Treatments, click here to view blog.
- USA Today: Health Insurers Find Back Door to Limit Choice, click here to view the article.
- Morning Consult: Cost of Care or Value of Care? Ask the Patient, click here to view the article.
- New York Times: Proposal to Reduce Medicare Drug Payments Is Widely Criticized, click here to view the article.
- Video: Evaluating the Quality of Evidence Used for Developing Value Frameworks, click here to view the video.
- PCORI Board Approves $20 Million for New Patient-Centered Research on Breast Screening, Cerebral Palsy, Hepatitis C, and Stress Management, click here to view the press release.
- ASCO Value Task Force Takes Two Steps Towards Patients, Slaps ICER, Abacus, clickhere to view.
In This Week’s Issue:
![]() I am telling my personal story because on May 26 the Institute for Clinical and Economic Review (ICER), a group that develops cost effectiveness reports for new treatments, held a public meeting in St. Louis about their draft report on the value of multiple myeloma treatments. I feel it is my duty to testify for all patients of this dread disease so that no treatments that demonstrate efficacy should be denied that extend or improve life because of monetary concerns In This Week’s Issue:
In This Week’s Issue:
![]() An article in Healthcare Dive highlights the Partnership to Improve Patient Care (PIPC)'s recent letter to the Centers for Medicare and Medicaid (CMS), which voices their opposition to the agency's Medicare Part B demo. The group expressed concerns over CMS' proposed use of comparative effectiveness research and cost effectiveness as national Medicare standards in phase two of the proposal and urged the agency not to move forward with the proposed rule unless it accommodates people with disabilities. ![]() An article posted today in The Libertarian Republic highlights the fact that the Centers for Medicare and Medicaid Services' (CMS) recent Medicare Part B demonstration proposal would use a quality-adjusted life years (QALYs) metric for rationing health care, which was banned following the Affordable Care Act (ACA) death-panel debate. The article also features the concerns of patient advocacy groups, including the Partnership to Improve Patient Care (PIPC), over the demonstration's potential to limit drug access for the elderly and physically disabled. They expressed concern that the QALYs metric fails to take real-life consequences into account - like doctors being pushed toward cheaper yet possible less effective treatment options. In This Week’s Issue:
1. FINAL DAY TO SIGN! PIPC/AAPD Letter Opposing Use of CER and Cost-Effectiveness in Medicare, click here to view the current list signatories and here to view the comment letter. 2. PIPC Call to Action: Grassroots Campaign to Oppose National Cost-Effectiveness Thresholds in Medicare, see details below. 3. PIPC/AAPD in Wall Street Journal: Lawmakers Criticize Medicare Plan for Costly Drugs, click here to view the article. 4. U.S. News: The New Health Care Rationing, click here to view the article. 5. AJMC: Inculcating the Patient Voice in the Development of Value Models, click here to view the article. 6. Kaiser Health News: Patients’ Assessment Of Their Health Is Gaining Importance In Treatment, click here to view the article. 7. Health Affairs: Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care, click here to view the article. 8. National Forum for Heart Disease and Stroke Prevention Launches Value and Access Initiative, see details below. In This Week’s Issue:
![]() This morning's edition of Politico Pulse highlighted the Partnership to Improve Patient Care's (PIPC) leadership among patient groups in voicing concerns over Phase 2 of the Centers for Medicare and Medicaid Services (CMS) planned Part B demonstration project. PIPC, along with over 40 other groups, are sending a letter to CMS acting administrator Andy Slavitt highlighting issues with the proposed change to lower the add-on payment for drugs in phase 2 of the proposed demo. WSJ: Lawmakers Criticize Medicare Plan for Costly Drugs; Concerns on Alternative Payments for Drugs5/5/2016
![]() An article posted today in The Wall Street Journal outlined lawmakers' concerns with the Centers for Medicare and Medicaid Services' (CMS) recent proposal to reduce Medicare's profit incentives to doctors who administer drugs. WSJ notes bipartisan concerns with the program, including the demands of dozens of House Republicans for the proposal to be withdrawn. In This Week’s Issue:
1. PIPC Grassroots Call on Congress: We Need More Voices Opposing Cost-Effectiveness in Medicare! Share note below with your networks! 2. PIPC Poll: Americans Support Patient-Centered Solutions, Oppose Government Determining Value, click here to view the full survey results. 3. PCORI Board Approves $44.4 Million for 21 New Patient-Centered Research Projects, click here to view the press release. 4. CMS Blog: Pursuing Health Equity for the Nation, click here to view the blog post. 5. AHRQ Names New Director, click here to view the article. 6. Blog: TIME Magazine Recognizes Two PCORI Awardees, click here to view the blog post. ![]() Over the last few years, I’ve been very outspoken on the need to engage patients and people with disabilities in efforts to define the value of health care. Engagement has become my ministry because, frankly, what we often find is “token” engagement - a pat on the head, with no real impact on policy development and implementation. I thought we were making real progress on engagement in this administration. It seems I was wrong. Over the last few years, I’ve been very outspoken on the need to engage patients and people with disabilities in efforts to define the value of health care. Engagement has become my ministry because, frankly, what we often find is “token” engagement - a pat on the head, with no real impact on policy development and implementation. I thought we were making real progress on engagement in this administration. It seems I was wrong.
In This Week’s Issue:
1. Tell Congress: Don't Let Medicare Get Between Patients and Their Doctors, click here to send a letter to your Member of Congress. 2. PIPC Poll: Americans Support Patient-Centered Solutions, Oppose Government Determining Value, click here to view the full survey results. 3. The New Era of Informed Consent: Getting to a Reasonable-Patient Standard Through Shared Decision Making, click here to view the article. 4. Designing Successful Bundled Payment Initiatives, click here to view the blog post. 5. When Effectiveness Wins, Everyone Wins: The Mission and Impact of PCORI, click here to view the article. In This Week’s Issue:
1. PIPC Poll: Americans Support Patient-Centered Solutions, Oppose Government Determining Value, click here to view the full survey results. 2. PIPC Patient Access Alert: CMS’ Part B Demonstration, click here for details. 3. Turning the Tide Against Cancer, click here to view policy considerations. 4. CMS to Launch New Primary Care Payment Model, see details below. 5. PCORI Board Chair: Changing the Conversation about Mental Health Research, click here to view the op-ed. 6. How One Doctor Turned to His Patients — Over Pie — to Simplify Medical Advice, click here to view the article. 7. Washington Post: ‘How do you feel?’ Doctors are starting to pay attention to the answer, click here to view the article. 8. PCORI Blog: Supporting Patients' Roles in Their Healthcare Decisions, click here to view the blog post. 9. LAN Consumer and Patient Affinity Group Principles, click here to view the draft. |
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